Down Right Awesome » Down Syndrome Radio

Dr. Tolbert, President of the NDSC Executive Council was kind enough to spend an hour with us discussing the upcoming convention in Orlando.  It was enough to get us all really excited! First, some background on Marilyn.  She is one … Continue reading →

The Down Right Awesome Dads give an end of year update.  Happy Holidays!  Happy New Year! Download Down Syndrome Radio, Episode #34.  

There is a new book out that we think you should read.  It is called Black Day: The Monster Rock Band.  Not only does it have a great storyline and really cool art, but there is a cool song too.  … Continue reading →

We had a super special guest on the show for this episode – Princess Kayla herself!  Fresh from her appearance on the Today Show, Kayla tells us all about it! Some other recent highlights: Kayla travels to the White House … Continue reading →

We spent a wonderful hour with Ricki Sabia, Senior Policy Advisor of NDSC, and got to hear about the following great topics relating to education: Universal Design for Learning – a set of principles for curriculum development that give all … Continue reading →

For those of you who have been living under a rock, there has been some REALLY exciting progress over the last few years in the area of DS research.  Who better to tell us about it than the Chief Scientific … Continue reading →

Believe it or not, we actually felt qualified to take this one on ourselves!  Between us we have SIX children successfully trained! First things first – We know how lucky we are that our three children with Down syndrome took … Continue reading →

This was a great episode.  We were very honored to have Sara join us on the program! Sara told us how she got interested in speech therapy and her decades of experience.  We learned about how she discovered that traditional … Continue reading →

Michael Remus is an expert on inclusion.  He is a parent of two children with special needs.  He has been a teacher and has written several books.  But most importantly (to me anyway), he took an entire school district into … Continue reading →

Just a catchup episode here to keep you up to date. First we did a quick wrap up on World Down Syndrome Day (March 21).  Then we jumped into the newest and coolest Ds Organization – the 321Foundation.  This new … Continue reading →

The new DS Registry will provide huge opportunities to improve the lives of our children! We had the opportunity to speak with Lisa Kaeser about DS Connect which launched in September.  Just listen to the list of potential benefits that … Continue reading →

We had the opportunity to speak with Lito Ramirez, founder of Down Syndrome Achieves.  DSA’s mission includes Research and Funding, Political Advocacy and Education.  They have a new initiative called ONE21.  ONE21 seeks to fund the development of a dedicated … Continue reading →

Dr. Vellody is the Medical Director of the Down Syndrome Center at the Children’s Hospital of Pittsburgh. This guy REALLY understands the medical issues faced by our children! Because the center that he directs is specialized, he sees an incredible … Continue reading →

Rachel takes us back in time, telling us the story of her first child Leah and handling her deafness from diagnosis to the development of Signing Time.  Like our children with Down Syndrome, Rachel found that Leah was considered ‘different’ … Continue reading →

The NDSC Convention last month was fantastic!  And who would know more about it than Mac Macsovits of the Rocky Mountain DSA?  It turns out Rick and his family were also there.  The convention was very well attended with excellent … Continue reading →